Lifslevande / Alive

Ohhh, I miss England sooo much! I miss my friends, I miss the language, I miss the shopps, the arciticture, I miss the cocholate, I miss the atmosphere and yes I do even miss the food and the weather! But most of all I miss my bestest of best friends- Ruth and our mad adventures!! I love when we pack her car andr drive, almost, aimlessly into the heart of Cotswolds. I love when we go out for a meal in the evening and chatt away for endless hours. I miss our shoppingsprees, the fact that we can end eachothers sentences, that we know eachother inside out and that we can talk about anything and everything!!

I have known Ruth for almost 10 years. I think it klicked emediately. Ruth is that kind of friend you only meet once in your life and to live so far away from yur bestest friend...it kind of hurts at times. Eventhouh we live many miles apart I know that she's there for me and I hope she knows that I'm there for her! I miss Ruth and England sooo much, especially in the autumn!

Ever since I was a smal child I loved England. Even before I went there the very first time! I had a Union Jack on the wall of my childhood room. I had loads of souveniers, pounds and gouide books all over my room! My heart has always longed for the green rolling hills, for the damp weather, the lovely tea, scones and friendly people!
My home away from home is Cheltenham, a town in the heart of Cotswolds. It's a posh little town with a heart of gold, loads of different possebileties, shopping way better than London and parks that you could only dream of!
Just a few miles away is Oxford and another few miles away is London. If you go the other way you come to Birmingham, Shakespears Stratford-upon-Avon and the smal lovely willages of Cotswold.
Oh, I miss it soooo!!!

                          
                                            Autumn in  Brodway a few years ago

                            
                                     No one does flower arrangements like they do in England

I keep longing for England, for my friends and for the freedom I feel when I'm there. It feels like people ain't staring just as much at me as they do in Sweden.... In Britain they seem more used to people being different than they are in a smal country such as Sweden. 
It was way worse when I lived in Helsingborg which is a fairly large city, but when I moved to the litle town of Ängelholm it got way better! It feels like you know everyone here. They are so friendly and I get the feeling of living in England!! I live close to the town square and they have farmers markets a few times per week, just like in England. Ängelholm is famous for all it's flower arrangements, just like England! I live next to a river and the forest, which to me also feels like the life in Cotswolds. Even the weather is a tad bitt different in Ängelholm as it is sittuated just underneath a ridge which makes it a bit more rainy and brings more thunderstorms. To me living in Ängelholm is like bringing England to me! I love it here and the only place I could ever imagine moving to is England- of course! Even Louis finds Ängelholm way better than Helsingborg, where we used to live. You can see how he loves to be outdoors, how he loves to meet all his friends and how he loves to tag along when I'm of somewhere.

It's a very autumny day today! I have a huge pott of vegetable soup simmering away on my stove, it smells divine! MOnika showed me how to improve my old recepie. When I have done my dreaded dishes and had a shower I will take Louis to the forest. I love to see the leafs changing colours, the smell of earth and moss, watching Louis run around and just feel that I can unwind. Then, when we are back home I will sink down in our beloved soffa and tast the soup!

The nature means alot to me and I wuld never, ever move to a place where I didn't have close access to the nature! Louis and I, we are lucky who found the appartment we live in now!! At the front of the house we have a very greeen yard and on the backside a lovely garden!
Just outside the door is the river RönneÅ and five minutes away is the Kron Forest. If you walk through the forest, for about 15 minutes, you are down by the sea! A lovely sandy beach. What more can you wish for??!!

                              

No aqua exorcise for me today, unfortunately... My laser wound is still making life a bit difficult for me and as the water is quit warm in the hospital pool it's not at all good to have a wound that is conected to your lymphatic system... And also, my back hurts like h*ll which makes changing a million extra times a tad difficult. So cross your fingers I'll be able to go next week! I really enjoy the aqua training!!

                            Thouh, there are other things to enjoy a day like today!

It was a few days since last! It has been a bit uncomfortable since the laser treatment; swollen leg, pain, redishness and so on. I have tried to have my leg elevated as much as possible, but all of you who knows me also knows that I find it very difficult to be still for to long.
The laser treatment sems to have been a succès, so far! I have one wound that keeps anoying me by bleeding but the other 3 or 4 seems to have healed- *knock on wood*. Hopefully I'll be able to participate in tomorrows aqua exorcise!

We, Louis and I, spent Friday and Saturday at my parents; Dads and Monikas place. They are rebuilding their kitchen and I tried to help them by cheering them on, serving beer and finding lost nails. I don't know if I did much to help, but it was good fun! Dad screaming at dead things and Monika sighing at his behaviour. Dad making odd inventions to try get the hood of the kitchen fan in place.... It sure sounds like a mad house, and I can ensure you that it is!!!, but we had alot of fun! They did some work on their kitchen, we made great food, talked, walked with the dogs, laughed at the dogs and just enjoyed ourselves. Watched german TV, had a sip of wine and a piece of divine cocholate mousse cake!
Both Dad and I have gigantic sweet tooths! I have always said that we have two stomachs; one for food and one for sweet things such as cocholate and cakes!! SOme how, even if we have had a huge meal both Dad and I have room for a sweet treat!

Louis loved the cabinetts Dad and Monika had built! The cabinetts didn't have doors yet and Louis thought they were great pinsher-appratments, he moved in with blanket, bones and biscuitts!!!

                                
                                                    Louis in one of the old cabinetts!!

Louis idolizes my Dad and follows his every step! Louis loves when Dad chases him, when Dad screams and when Dad does things even a dog knows is not allowed! But if Dad does it, it sure must be okey?!!?
On Saturday morning when Dad got down to say goodmorning Louis jumped by his side and run to the sittingroom. Dad akeed "what is it Louis?" and Louis run and stod infront of the fireplace wagging his lovely little pinsher tail! "What?" said Dad and Louis jumpe up in the soffa and laid down on his sheep skin. "Do you want me to light the fire?" When Dad went to get the lighter fluid Louis ran with him; jumping and twirling around! Running infront of Dad back to the sittingroom and the fire place and jumping up in the soffa!!! Never, ever tell me that dogs can't communicate!!!
A saticfied Louis stayed in the soffa, enjoying the warmth from the fire!!

When we stod in the kitchen talking, on Friday when Louis and I had just arrived at Dads and Monikas, their dog Maxi went to is big doggy-snack-bag and picked a bag of treats. He trew it at Monikas feet and wagged his tail!! So Monika had to open the bag and treat Maxi and Louis to the treats!

As Louis has had problems with his tummy he's not allowed to eat some doggy snacks. But when Monika, or I, gave the forbiden snacks to Maxi, and something else to Louis- Maxi ran out into the gaden and gave the forbiden snacks to Louis!!! I just love our dogs! And they sure love eachother! They are up to so much mischief togther!
If you give them ecah a bone, identical, they still just want one!!! Most of the time the most disgusting looking, an smelling!

                         
                                            Monika serving the dogs!! Louis shewing!
               (Louis is wearing a sock 'cos he has a little wound on his paw that he just can't leave alone!)

Louis and I, we have really had a wounderful weekend! Louis was so tierd when we came home that he sleept for almost 16 hours on a row! He onli left his warm retreat for food, a drink of water or a walk.
Today we have nothing sheduled! I went to bed with a horrible migraine and with my luck even woke up with it. Louis and I stayie din bed till 9 am and then went for quite a long, but slow walk around the river. It was lovely 'cos it clerared my head and gave me time to think. I am pretty stressed out as soon as a new week begins... There's sooo much that needs to be done, hospital appointments and other things like that. To start of with I don't have the strenght but I need to go to all the appointments to get strenght and to keep mu body going! What I need is to slow down inside, not get worked up or stressed and give myself the rest I need! Try to accept  that there are things that I can't do, that I'm not able to cook if I've been away on a hospital appointment, that I can't clean on a day that I have been away, I can't do the grocery shopping on my laundry day even if there might be time.... I need to slow down 'cos my body just can't take it!! I need to choose, I need to plane and I need to prioritize!! I want to be around as long as possible and be as fit as possible when I am! I want to live as long as I'm alive!!!

So, threrfore today is a day when I have nothing planed more than a few phonecalls. If I feel that I'm up to it I will go the few steeps down to the Supermarket to get milk and eggs. I went grocery shopping on Saturday together with my parents. I don't have a car so I cant go to the big supermarkets outside of town and I can't buy heavy things 'cos I can't lift them. So, they helped me shopp,but sure enough did I forget somethings and milk...well, it's always out when you need it even if you have stocked up!
I'm still in my swetpants and need a shower! Louis is asleep in his huge basket and doesn't seem to think todays plan of taking it easy being a bad idea!

                              

    This week is filled with hospital appointments, so this day of rest and spoiling ourselves is much needed!

I had a YAG-laser treatment done yesterday at the University Hospital of Malmö, Skåne. I have had other laser treatments done before, but with other kinds of laser. The previous once have been lasers that have scared my skin so that the bleedings should stopp. As the skin gets scared it also gets thicker and doesn't rupture as easy. But this new version of the YAG-laser goes deeper and "pops" the veins. It really sounds like a "pop" when the vessel breaks. The blood coagulates emediately where the laser beam has been shot and the visual sign of the laser is a redish rea aroun where the laser has been preformed, a bit of brusing and a scab that should be left alone so that it doesn't start to bleed....
This laser treatment is said to be better for KT-patients as the laser beam goes deeper and as it, most of the times, does the trick. Other lasers might not close the vein of propperly but the YAG does. The scaring is also much less than with conventional laser treatments.

The treatment is very painful, but just for a second at the time. When you hear the "pop" it really, really hurts but that's just for a second and after that it's totaly painfree. The problem is just taht you have to go through this one-second-pains about a hundred times. It's a bit exhausting to feel this intence pain so many times, but soooo worth it! I feel that the pain is more intence that the other lasers I have tried but after that very painful seconds it's painfree. With my last laser treatment I got wounds that didn't heel for weeks, that was painful and very problematic.
Today, the day after my laser treatment, I'm a bit sore but the most profound problem is that my KT leg is very swollen. As the treatment "sealed of" some troublesmome veins the blood now needs to find new ways to get around. The swelling is painful and quite uncomfortable. Thouh, that's a smal price in the long run! I just need to keep my leg elevated, rest a bit more than usual and try to keep the scab of the "wound" on as long as possible.

I can really recomend this laser treatment! Keep your fingers crossed now that this treatment has been succesful! It will take a few days before we know if it's as succesful as we anticipate!

Sorry I haven't been writing in a few days! I find it very difficult to come up with interesting enough topics to write every day, and also even if I'd love to write more often- there is not enough time. But now I'm here, sat infront of the computer, Louis asleep in his basket after a quite "me-me-me" morning where he needs all my love and attention.

On the other hand, that's one of the things I love about Louis, the fact that he communicates! He whimpers alot when he wants something and wants me to understand what he wants. For example, when he wants me to lift his blanket so he can crawl underneath it and fall asleep, or when he wants fresh water, biscuitts or anything else! I just love that he communicates!!
Louis is a dog with very strong feelings- and oppinions for that matter! He just loves to tag along on adventures; by train to mums, in the forest or by car to Dads. Yesterday when I was of to aqua exorcise I had packed the very same backpack as I use when Louis and I go to Dads and Monikas. Pooooor Louis! He really thought we were of to something lovely, and then I left him home alone.... Oh my dear Louis! Thouh, we are soon going to Dads and Monikas for a sleepover and Louis finds that the best thing that can ever happen in a pinshers life!! He loves to go by dads big black car, to play in the garden with Maxi, to eat alot more than I fing okey, to sleep on the sheepskin in the soffa infront of the fire.... I know this might sound totaly odd, but Louis is and so am I ;-), but Louis loves when everyone is seated infront of the TV, not running around and just watching TV. He sleeps like a log with all his four feet up in the air!

                                              
                                                    Louis asleep in our soffa!


So, this week is filed with various activeties. I do usually not do other things during the week than go to the hospital, aqua exorcise with my physio, domestic "duties" and take care of my dear little Louis. I don't have enough energy and pain is horrible after all my other activeties. But this week, tomorrow to be exact, is my grandparents (fathernal) 60th anneversery!!! That is not bad! We are invited to go to a very nice seaside restaurant in Helsingborg for a lovely evening. My onkle and his "girlfriend" are coming all the way from Spain, my cousins from Stockholm and Omas (grandmas) sister Helga from Hamburg, Germany. The rest of us are scrambed togeher from around Helsingborg.
It's a Thursday so I don't think it will be all to late, at least Oma knows that I'm not able to be up and about for to long. I have allready had a glance at the menu and think I know what I would like to eat... I'm a lover of fine food, I think I have that after my Dad. I love to try new things and am not afraid of strang things. I do love nicely cooked dishes and lovely presentations. I do also love a fine wine, even if my KT doesn't allow me to drink more than half a glass.

Then on Friday I'm invited to a "fare well" party at my friend Mias place. She is moving to Warwick in England to do her masters and I will miss her alot! Even if we don't see eahother that often we know where we have one and another and try to get together as often as possible. My illnesses is often the thing that makes us getting together impossible.... But, on Friday she has invited me and some ither friends for clams, laughther and pure madness! It's a gang of mostly girls who have lived in The UK for long periods of time. So, English jokes and tea is something that I just know will be present on Friday! Thouh, Mia knows I wont be able to saty all night- she, just as Oma knows that KT can take more than it's fair tool on me. Damn KT! I just hate it! Well, well- the most important thing is that I can be there for a while!
 
At the end of the week Louis and I are seeing Dad and Monika! We are just going to hang around their house, eat lovely food, sit infront of the fier and just enjoy life. So that is not to much pressure on my body. Even less than being at home really ;-)

My joints are pretty bad at the moent. Especially my neck and back. So typical autumn-symptomes. That's life and I'm trying to do the best possible of the situation; try to do the things I had desided to do and first and foremost- things that I want to do!!!
It's a really crapy weather over here in the South of Sweden. We are at the moment dealing with the storm Katie that caused loads of damage in Scottland just a few days ago. Thouh, the storm isn't at all that bad now, but bad enough for Louis- hihi!!! This morning he refused to get out of bed an sleept until 9.10 am whish is somekind of world record for him!!

                                  

Hmmmm, I really don't get it! I'm trying to download my banks app to my iPhone and have done so according to iTunes. But where on earth does the apps end up in your iPhone?! Me and moderna technology, well that doesn't rime well!!
I have a friedn who works at "3" so I have texted him and hope he'll get back to me and will be able to explain what I have done, or not doen. Hihi!!! Sooo typical me!

Today Louis and I are going to mums to celebrate her birthday! She turned 56 last Wednesday but as it was midweek she decided to wait two days to celebrate. Louis knows we are going somewhere today as my backpack and a bag of gifts are packed and waiting for us to get ready to leave! Louis loves adventures, especially when we are going by train or car. The best thing that can happen in Louis'es life is when Dad picks us up in his big black car and takes us to his house. Louis just loves it and am so skitich all the way over there that he trembles like a leaf!!

Well, so mums birthday celebration today!
I still don't know what to wear. I don't like family gatherings at all so I feel that I need to dress in a way that gives me selfconfidence... I don't know how it's with you, but if I dress in clothes I really like and that makes me feel good then it kind of boosts my selfconfidence alot. That's kind of the reason I bought all new underwear before I had my big messuring-joints-and-muscles-session with my physio ;-). And the very same reason I have a lovely purple Speedo swimsuit when I go to aqua training. I knooow, I'm strange! I know it's the inside that counts, but really, how I dress is not for everyone else but for me to feel good about myself!
So, I'm thinking about wearing my orange stockings, jeans skirt, top and orange suit jacket. It might sound horrible but I love bright autumny colours!
Or, I might wear my brown Kennedy dress and black stockings....
Oh, I really don't like these family gatherings.... I feel so lonely. As if I don't fit in. Thouh, Louis is with me and he's my family!! I soooo wish Ingela, Mattias and the kids lived closer 'cos they are much like a family to me. L and L are such wounderful boys and I love the way they try to say my name or the way they think Louis is the most cuddly puppy in the world. I apprichiate the pictures Ingela send me of L and L, when they are up to something mischivious or when they just smile with that huge grin that kids do! Lovely L and L!! I miss them sooo!!!

It's so typical me to slide onto another topic when I'm writing! Sorry! I know I could correct it and move around the pices of text the way I want as this is in writing, but I like my blog to be a mirror of me. I like it to be as close to reality as possible!!

I ought to take care of our dishes now, I just hate doing the dishes!! It takes forever as I keep doing other things...
Take care you all and have a lovely Friday!!

                          
                                         The cake I made for my birthday in July!
                                                  Happy Birthday Mum!!

I woke up early this morning, I had an appiintment with my physio Anna at 8 am. Todays "exorcise" was to messure the movement in my joints and the strenght, and destruction, of my muscles. Anna is a fantastic physio, I have had 31 physios through my 29 years but Anna is one of the very best!! She really tries to understand me and my body, she treis to find ways around obstacles and she supports me. The messurements today showed that my joints has gotten much worse, and also my muscles. The only thing that has really improved was my elbows and the fact that I can stretch my arms a bit further than before. We have practised that alot at aqua so I'm pleased that it showed result!!!
Anna was very supportive about the deterioration of my muscles and jints and promissed to get a hold of my reumatologist to try get her to find a new course of treatment for mer. The major problem with a reumatic illness is that you "relaps" (hard to find a proper word for "skov" in English...) and then you trie to work to get back to where you once were, but you never end up at the step where the relaps started. It's so hard to explain but try to imagine my path of life as an alphabet where A is the step I'm at now (to make it easier). When I relaps; as you do every now and then with reumatic illnesses, you fall "down" to an F on the alpabetic scale. You work and work to try to stop the relaps, to get back to the A where you were just a few weeks ago. Yes, you get better but you only end up on a C or a D... You are still worse than when the relaps begu, but better that the worst days and weeks of it. Is it understandable?!?!
So, the problem is really that I keep getting worse and need a course of treatment to slow down the deteuration and the frequenze of the relapses. I would like to get "well", but I know I can's so what I want is to slow down the progress, slow down the speed of which my body breaks down- one step at the time. It's sad..., I really can't understand it!! It's difficult to get my head around it... I have two illnesses/ syndromes that keeps destroying my body, that keeps taking away functions of my body and that keeps making me more and more unable to do what I want. I try to take controll, try to think ahead ans really, really try not to get defeated. It's just though! It really is.
I keep repressing what has happened during prior relapses and during times of the year when the weather is cold, dry and wet. I end up supprised every single autumn when the big relapses comes, when I have to fight even more to get my ingers to cooperate, to be able to stand up for longer periods of time and I also tend to forget about the pain....
Oh lord, here we go again! But still, I love the autumn! I love the beautiful colours, the chilly mornings and the crispy weather. I love the rainy days when you can sit inside and read, drink tea and cuddle with your loved one, i.e Louis =).

Yes, Louis. His tummy is making my life difficult again! It's not easy to love someone as much as I love Louis!!
Louis seems to have no problems at all; he's as picky as ever with his food, as mad as always when the postman comes and this morning he had a lovely "cuddle-time" with my neighbours cats! Louis sat outside our door with four cats around him, wagging his tail! The cats walked around him, rubbed themselfs against him. He just sat there as the king of the hood and loved having the cats around him! I held him, just if he got naughty ideas ;-)!! But it all went well and louis loves my neighbours "daddy" cat Benjamin. My neighbours have 5 cas; mummy cat, daddy cat and three one year old "kittens". Since we moved here Louis has gotten to know all the neightbours cats as the cats are outdoors alot of the time. We run past them on our way up to our appartemnt, in the garden and in the yard. My lovely little Louis!
There's one cat "Snow white" that has given Louis a scar abow his eye...

Louis tummy, please keep your fingers crossed that Louis will bounse back as quick as possible. I don't know if it is so "bad" or just me being sooo worried all the time 'cos I love him soooo much!! I mean, anybody can hava a doddgy tummy and it can take a while before the stomach gets back to normal. As I have said before, the memory of Decembers close-to-death illness has caused me to worry alot over things that might not be so serious. Might.... I just don't want to end up loosing my Louis! An animal is so much more fragile than a human as their life expectanse is...shorter. But, that doesn't prevent one from loving them just as much as a human! I don't have any children, Louis and I live on our own- he's my everything! My days evolve around him!!! Louis is the best medication in the world- I would be much worse of if I didn't have him to keep me on the go ;-)

                     
                              
                                                                       "Hello world!!!""

New week, new adventures!! As almost every Monday it's laundry day. Things like doing laundry is very exhausting to me so days like today I tend to rest after I've finished with the laundry. I made some easy, might calle it lazy, cooking and bought a grilled chicken. Louis was sooo trilled when he smelled the chicken and did everything in his power to get a hold of it! I had to hide it in the owen so that he couldn't take it! He would eat it all; meat, paper bag, carcass and all...
I have learnt Louis that if you don't steal, nick or by any means take things thats not yourse you will eventually get a tast. Thouh, somehow Louis doesn't think that applys on grilled chicken, cocholate and popcorn.
Well, when I made my lunch I made Louis'es too. Happy dog, happy Marie!!

Tomorrow, Tuesday, I'm seeing my nurse Ewa in the morning. She keeps track on my weight, blood pressure and other things to help me keep on track with everything from eating right to medicines and...you name it!
After lunch it's time for my weekly aqua training.

Wedensday morning, telephone meeting with my "associate" Ingela. Together we have started a patients organisation for patients with Klippel-Trenaunay and similar syndromes. We are going to try to get things sorted, make a plan for who will do what, what to do and put a time limit to it. In other words, kick ourself in the but!!! This organisation "Svenska Klippel-Trenaunay Syndrom Nätverket"" has been my dream for many, many years. To help and support patients, family and friends who lives with KT.
Wednesday after lunch, occupational therapist.
Wednesday is also my mothers birthday!!!

Thursdag 8 am, physio therapist. She is going to go through every single joint in my body to see if I'm better, worse or just....still kicking ;-). I have only seen this physio for a few months. She is physio no 31 in my life... Imagine, in 29 years I have seen more or less 31 physios.... What am I doing to them?!?! Hihi!!!

Friday is a hospital free day. Thid evening Louis and I are going to Mums to celebrate her birthday.

This week seems to be an easy going one with not to many hospital appointments. I hope the weather will clear up, 'cos it's raining maddly today, so that Louis and I can spend some time out doors. I love the outdoors and as we live close to a lovely forest and just by a river banks, it's always lovely to take a walk or just sit down and red a book. Watch Louis run round.
Thouh, honestly, I do like this weather too. I love to curl up in the soffa when the rain is pouring down outside. Listen to the wind, drink hot cocholate and put on really warm wool socks. I've realised that I love autumn and winter. I miss the snow. I really do!! I rather freeze thah swet. I love the fresh, crispy air that winter brings along. i love the colours that autumn creates!!! I'm all for the summer ending and the dark, colourful seasons to enter!

                            
                                                                  Winter 2010

Hi there friends!
Sorry I haven't been bloging in a few day. I have been worried alot and that takes my focus away, therefor no bloging.
The worry this time was, as I mentioned a bit in my last entry, Louis. He has had a doddgy stomcha with some blood in his stool. No good, but not as bad for a K) or a feline as for a human being! Dogs and cats are more prone to irritations in their stomachs and bowls, and they also are more prone to bleed a bit when they have crapy stool for a few days. So that is, basicly, what was wrong with Louis but I jsut get so worried as we almost lost him just before christmas last year. He got a very bad bost of a bugg called clostridie and just bleed and bleed. We had to take him to the vets office and he was addmitted for two days. The first day they didn't know what was wrong as he bleed alot out of his bowl and they tought I might loose my dear Louis. Thouh, the bleeding stopped and Louis bounced back. Thouh the bouncing back took almost 5 months!! A side effect of Louis being this ill was that his pancreas took a tool and he got an inflamation in his pancreas.

You can't cure problems with your pancreas, not in human and not in animals... We have been giving Louis a new dog food called "Royal Canine Gastro Intestinal" and that has helped Louis to get back to his happy, bouncy self!! He has been doing very well since April-even if the test says he might not be doing so great... Thouh a vet we know who wroks at Din Veterinär told me not to listen to Djursjukhuset and just let Louis live and love life as he always has!! Louis has been doing great; eats, drings, plays, take long walks and is just as happy as a dog can be!!
So, whenever he gets in to a "low" like this or anything els that makes his health waver I get worried beyond boundries!!! Louis is my everything and all I want for him is to be healthy and happy!! That he can enjoy life, unlimitied, and just be as happy as a dog can ever be!

Together Louis and I managed to cure him with rest and food that's kind to his bowl such as over boiled rise, boiled chicken (as he eats every day anyway), caned dog food instead of dry food and loads of carrots!!
We have just been taking short alks, to Louis dissapointment!! We have only used a short leach and not his flexi-5 meter leach. By now Louis is pretty agitated with me, he only wants t run off leach or on his long leach and sniff other dogs doings. Thouhm he needs to rest his nervs ;-)

Cuddling Louis while writing I found a tick...Auuuugh!!! Need to go into tick-removing mood!! The problem this time is that it's on his....balls... Really!!! How did it manage!!!

Me, I'm doing okey. Headache as ever. Tierd and a bit down about tomorrow being Monday, allready, and that meens a new week with new appointments. Thouh, I'm ready! Went shpooing yesterday, Saturday, at Väla (huge shpooing centre 30 minutes by buss from where I live). Felt that I needed new lingerie so that I feel more confidente standing there infront of my physio whe she is messuring every single joint in my body, so that I feel confident when I'm going through my laser treatment on the 19th of this mont and so that I feel confident enought to go see all doctors I need to go see. It's hard to explain, but if you like me go see alot of medical professionals you know that some of your confidence really is in what you are wearing! And when you are barely wearing nothing it's even more important to feel good about yourself!
What I found ws a lovely cocholate brown Bra and cocholate brown boxer underwaears, very feminine, with Versaile patterns.  I'm not a very feminine person and really not a person who likes to buy girly langerie so what I found was great!!!

I did also do some other shopping such as a lovely long sleeved milk with top from Esprit, orange tights and a torch! Louis loves his midnight walks so I need a torch to be able to find his doings, the keey hole and Louis himself ;-) !!!
I did really need a bit of a shopping spree and, honestly, it was lovely to go by myself! I wish I had a bit of spare money so that I could go on yet another spree and buy the things I really couldn't afford... I need a wool sweeter/cardigan fo this winter. It's sooo darn cold here!! I do also need a jacket. I'll cross my fingers I win on the lottery, which I'm never playing on, or that I'll manage to find someone with mercy- lol! Well, I'm saving and maybe next month!! Or start up a fond for supporting...long walks with Louis = warm clothes!! Hihihi!! Bless!

Oh, I have forgott to tell you! I called the office of my vascular surgeon to get an appointment to go see him. The nurse tolf me "he's retierd!"
Whhhaaaaaaaatt!!! It felt like someone was punching me in my stomach!!
 That can't be! He has been my surgeon for over 15 years and all of a sudden he's just not there anymore.... I have been refered to the doctor filling in for him, but the nurse told me that this doctor is far from as good as dr Lindblad was. What the f*ck!! How the hell can they let a KT-patient see a doctor who barely knows a vein from a capilary!!! Lord, have mercy on me!!
I'm very sad... A vascular surgeon in the life of a KT:er is like Jesus in the life of a Christian!
I have to ask my plastic surgeon to help me find a new surgeon who is close to the caliber that dr Lindblad had! I really thought that specialist doctors never retierd!!! Honestly......

So, that tick on Louis'es...privat parts... Really need to get that sorted! Then I'm gone call this a day!
Mum has been here almost all day heping me cleaning my appartemnt. There are things I can't do by myself and once per month Mum comes and help me with that. Such as cleaning on shelfs, cleaning my floors thoroughly and help me cary heavy things around. I'm greatful that she had the chans to help me!!
We had chinese for lunch and after walking Louis we sat down in our soffa and treated ourself to my freshly baked cocholate muffins!!

                     
                                   A few steps from where Louis and I live in Ängelholm