Lifslevande / Alive

Sorry dear readers, that I haven't been writing at all lately! I have been away, in England, for a few days and as the world is nowadays I didn't want to write on tha blog that I was going away! Hope you understand...

I have been in Stratford-upon-Avon in England. I went there to attend "the Proteus Family Networks" family weekend. The network is for people with overgrowth syndromes such as Proteus and KT. This is the second time I attend this meeting, they are held every second year.

We did all stay at the Holiday Inn in Stratford, which was a lovely hotel! What a breakfast bufféet!! Believe me, I have never ever had so much for breakfast in my life! I did eaven go for a Marie-verison of a full English Breakfast =) Lovely!
I had a huge room all to myself! A comfy bed and a walkin closet!

I have soooo much that I want to tell you all but I'll start of with just the most wounderful things that I experienced during this short stay in England.

I did finally get to meet Ingela, Mattias and their two boys Lu and Li! I feel in love with L and L! Li does also have KT and is the most amazing little boy that I have ever meet! He sees no obstacles and just runs around as if he had no problems at all! Li is turning two this summer, his big brother Lu is 3½ years old. They do also live in Sweden, buth 5 hours by car from where I live, so I can't meet them as often as I'd like to. Oh, I wish I had words to describe how amazing these two boys are! Especially Li with his currage, fighting spirit and way of charming everyone he meets!

I did also meet many other dear friends! First out was Mary who arrived at the hotel Friday afternnon. We had tea, a chat and a little walk. We have been corespondancing the old fashion way- snail mail, the past two years. We meet two years ago at the family weekend in Manchester. Since then Mary has been one of my closest firends. Mary is the same age as my parents but what brings us together is KT and the life we have to lead wit this complicated syndrom.

7-ish all of us that had arrived at the hotel meet in the bar for supper. Finally I got to meet Shelly and her mum, Jean and Collin, Chloé and her boyfriend + Chloés family. I was amased by how mych Chlóes little sister had grown! But, on the other hand, two years is a long time in a teenagers life!
Lynda was there too, with her parents! I was so happy to see Lynda as I've tried to get in contact with her, and finally we meet again and exchanged e-mail addys on the spot!
We had a lovely supper together! Two years, as I have said a million times, is a very long time and there is so much catching up to do! We talked, laughed and huged. Yhouh, everyone was very tierd and we decided that we have more time through the weekend to catch up!

Oh, I'm still very exited!!! I meet so many wounerful friends- old and new once during the weekend in Stratford-upon-Avon! I have so much to tell you all; about my dear friends, about KT and things that I learnt about KT that I didn't know before!!! Pictures to show you and adventures to chare!

I'll write more as soon as I can, now I have to go down to the station to pick my mother up. She's spending the weekend here in Ängelholm with Louis and me!! That will be lovely! I'm going through a rough time and I find it hard to be by myself. It's nice to have mum staying over!! 

Got to go!!!
I'll write more as soooon as I possible can!!!

// Marie