Fever and life
Watching the news..., what on earth is happening in England?! My heart is beeding!!! England is my second home and half of my heart and soul are always left behind in the United Kingdom. Oh, my beloved England!!!
To be honest, I can't get my head around why all this is happening?!!? I know a man was killed earlier this year, but was it by the Police?! Why all this ragge?! Might it be more ragge hiden underneath?! More than just the death of the young man that they say started this?!?
Louis and I have been taking it easy today. I have a fever and alot of pain in my body where I have my KT. When I get an infection my KT always gets way worse. My KT gets red and tender, warm and the hemangiomas gets hard. The cure is rest, elevate my leg (where most of my KT is), add some medications to my all ready solid amount of pills and put som hirudruid cream on my KT. Ugh, well, well- what is there to do?! Smile and be happy!
What I really don't like and can't come to terms with is the pain.... I'm always in some kind of pain even if I take a lot of painkillers- but when the pain is as bad as it has been for the past few days, the painkillers doesn't help. I keep entertainig the thought- how much pain would I be in if I didn't have the painkillers, that I do have, at hand?!!? Well, I kind of know how it feels 'cos there are some hours every day inbetween the times when I take my meds that is pretty bad... The thing with me is that I have kind of rpressed how it felt before when I didn't have the coctail of drugs that I have now.... I'm greatful for the help I get from my anasthetiologist dr Jan, he's great!!!
Since I wrote a few weeks ago I have taken a break from my chemo injections. The nausea, fattigue and constantly feeling as if I'm in a daze didn't go away. The last weeks it almost felt like the side effects got worse. My body was all worn out and it felt as if I didn't have a life. I barely remember anything from this summer exept from me sleeping, watching TV and...doing the dishes ;-). Well, really, I didn't have a life at all. I sleept for two days after the injection, were very tierd for three days after that and had problems wuth my stomach. I had one or two days per week wher eI could do things. So, I tried to do my laundry, grocery shop, see friends, go to all my dr's appointments and enjoy life- all in two days! That didn't work, at all!!
Even the days when I'm up and about I don't have the strenght and energy as a "normal" person. I can do one or two things per day. For example; if I do my laundry that's what I manage to do that day. I have o energy left to cook so laundry days are food-from-the freezer-days.
If I do the dishes I need to have a rest afterwards. When I have had a shower, I need a rest, and so on. My body doesn't really play along with me but I'm trying to get to know this body that I live in. I'm really trying to make the best out of it and my intent is to try to plan ahead and try not to let KT win over me.
So well, no injections at the moment but I'm back to see my reumatologist. I'm a bit nervous 'cos she really thinks that the meto ject (chemo) injections are great. I guess they could be but my anatomy is very different from "normal" poeple due to my KT. The injections did help. I didn't realise until I got of them.... My hands and fingers got worse first and them my ancles and neck. Even thouh, it's not worth to take the injections...
Well, I have to hear what my doctor says tomorrow......
Now, I need to e-mail my GP and tell her to prescribe more medicines. My GP is great too. Before I always had to call her practise and try to get a hold of her so she could prescribe my medications. But she gave mer her work e-mail and now it is alo easier to get a hold of her.
Then, rest again. I'm really tierd and in pain now. Louis has been a dream dog today and sleept till after 9 am and has been "taking care of" me today! Oh, I love my dog soooo much!!
Take care of you all!!!
7 Marie
To be honest, I can't get my head around why all this is happening?!!? I know a man was killed earlier this year, but was it by the Police?! Why all this ragge?! Might it be more ragge hiden underneath?! More than just the death of the young man that they say started this?!?
Louis and I have been taking it easy today. I have a fever and alot of pain in my body where I have my KT. When I get an infection my KT always gets way worse. My KT gets red and tender, warm and the hemangiomas gets hard. The cure is rest, elevate my leg (where most of my KT is), add some medications to my all ready solid amount of pills and put som hirudruid cream on my KT. Ugh, well, well- what is there to do?! Smile and be happy!
What I really don't like and can't come to terms with is the pain.... I'm always in some kind of pain even if I take a lot of painkillers- but when the pain is as bad as it has been for the past few days, the painkillers doesn't help. I keep entertainig the thought- how much pain would I be in if I didn't have the painkillers, that I do have, at hand?!!? Well, I kind of know how it feels 'cos there are some hours every day inbetween the times when I take my meds that is pretty bad... The thing with me is that I have kind of rpressed how it felt before when I didn't have the coctail of drugs that I have now.... I'm greatful for the help I get from my anasthetiologist dr Jan, he's great!!!
Since I wrote a few weeks ago I have taken a break from my chemo injections. The nausea, fattigue and constantly feeling as if I'm in a daze didn't go away. The last weeks it almost felt like the side effects got worse. My body was all worn out and it felt as if I didn't have a life. I barely remember anything from this summer exept from me sleeping, watching TV and...doing the dishes ;-). Well, really, I didn't have a life at all. I sleept for two days after the injection, were very tierd for three days after that and had problems wuth my stomach. I had one or two days per week wher eI could do things. So, I tried to do my laundry, grocery shop, see friends, go to all my dr's appointments and enjoy life- all in two days! That didn't work, at all!!
Even the days when I'm up and about I don't have the strenght and energy as a "normal" person. I can do one or two things per day. For example; if I do my laundry that's what I manage to do that day. I have o energy left to cook so laundry days are food-from-the freezer-days.
If I do the dishes I need to have a rest afterwards. When I have had a shower, I need a rest, and so on. My body doesn't really play along with me but I'm trying to get to know this body that I live in. I'm really trying to make the best out of it and my intent is to try to plan ahead and try not to let KT win over me.
So well, no injections at the moment but I'm back to see my reumatologist. I'm a bit nervous 'cos she really thinks that the meto ject (chemo) injections are great. I guess they could be but my anatomy is very different from "normal" poeple due to my KT. The injections did help. I didn't realise until I got of them.... My hands and fingers got worse first and them my ancles and neck. Even thouh, it's not worth to take the injections...
Well, I have to hear what my doctor says tomorrow......
Now, I need to e-mail my GP and tell her to prescribe more medicines. My GP is great too. Before I always had to call her practise and try to get a hold of her so she could prescribe my medications. But she gave mer her work e-mail and now it is alo easier to get a hold of her.
Then, rest again. I'm really tierd and in pain now. Louis has been a dream dog today and sleept till after 9 am and has been "taking care of" me today! Oh, I love my dog soooo much!!
Take care of you all!!!
7 Marie
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