Lifslevande / Alive

A new week, and this is the week when summer seems to end. People get back to work after their holidays, school starts and the spirit of holiday and summer seems long time gone. Not that the autumn is a bad thing, not at all, it's just that it feels sad to say goodbye to the summer and the feeling of being a bit more free. Thouh, the autumn brings a chans to get going and feel that things are happening and we are moving forward!

This morning I went to this weeks first hospital appointment, all went well and I came home pretty early. I just got a sudden urge to make pancakes. And so I did- out of six eggs!!! I can just say that I have enough pancakes to feed a small army. Thouh, I love cold pancakes, nice as a late night snack or for breakfast!
When we munched on our pancakes we watched the film "Despicable Me" (Thank you Joel for lending it to me!!!). I really liked it! It's, for those of you who don't know, an animated film about a villain who wants to steal the moon. It's a heartwarming film about how a seemingly evil person can be soft and lovabel under the surface!
Louis were druling and shivering as he sat beside me wating for his chare of pancakes!! He really, really loves pancakes- and so do i!

Tomorrow morning, Tuesday, is this weeks second hospital appointment. I'm going to see an orthopedic technichan who will take messures of my KT-leg so that I can get new supportstockings. I use SIGVARIS supportstockings every single day, from I leve bed in the morning till I go to be at night. Yes, of course I trake them ofehrn I take a shower, swim or anything els that is wet ;-).
It was quite a few years since I last messured my leg for stockings and a vascular surgeon in England told me that it should be done atleast once, or twice, per year. The technichan messures every couple of centimeters on my leg to make sure that the stocking will be compressing my vascular malformations enough to ensure that my leg doesn't swell to much. The circulation in my KT-leg is very bad and if you have bad circulation it is very easy to get ulcers. And, if you get ulcers and have bad circulation it tends to take forewer for them to heal... It's a catch 22!!
I can barely walk without my support stocking. When I wake up in the morning my leg is almost twice as big as when I wear my stocking! Standing up without the stocking makes my leg swell very fast, it gets num and you can see how my hemangiomas and malformations protrude. It's quite painful and my foot gets num. When this happens I have loads of blood pooling up in my KT-leg which makes my heart beat slower... So, it's very, very important for me to use my stockings! To have once that fits perectly and that gives the right amount of compression.
As a kid I hated my supportstockings and for many years I didn't wear them, but as an adult I couldn't live withouth them- they are my second skin!!

                  

Louis, mum and I at a summer picknick! The legs with red shoes are Mums and the leg with the black shoe is my KT-leg with the medical supportstocking from SIGVARIS in Schwitzerland.

The stockings are pretty nice and when I'm wearing skirt or dresses it takes a whie for people to notice that I'm actually wearing one! The stocking is a part of me and to be honest I rather show my bare leg with the stocking than without it. People nnowadays are very ignorante and tends to stare alot, And KT is very different and looks very....odd. All KT:ers are different and so are their malformations. I don't have any good picyures of my KT, but when I do I'll show you how my KT looks like.

Third, and last hospital appointment for this week is to see my therapist. She has been on holiday for four weeks and it feels good to see her again! She helps me alot. Life with KT and arthritis isn't a walk in the park- I do really need her to stay sane ;-)
She helps me tackle the uncertainty that KT gives... She helps me keep my head above the water. It's quite hard to know that I have two illnesses that destroys my body... Kt in its way and arthritis in its own.
I used to be ashame to tell people that I see a therapist..., but why should I be?!!? I'm just happy to be alive and I want to live as long as I'm alive; and as long as my body is okey enought to let me do things that I do enjoy!!!

My stomach is talking gibberish and I think I ought to feed myself =)!!!

Looking out the window, watching the autumn make its entry! I like the autumn! Hot cocholate, candles and warm cuilts!! Forest walks and then cuddle in the soffa drinking tea and eating scones!!!

Take care of eachother!!!